{"id":2599,"date":"2023-06-01T15:08:22","date_gmt":"2023-06-01T15:08:22","guid":{"rendered":"https:\/\/www.maratonmartinfiz.com\/?p=2599"},"modified":"2023-06-01T15:14:49","modified_gmt":"2023-06-01T15:14:49","slug":"la-lucha-contra-el-iff-se-hizo-presente-en-la-xx-edicion-de-totalenergies-vitoria-gasteiz-maraton-martin-fiz","status":"publish","type":"post","link":"https:\/\/www.maratonmartinfiz.com\/en\/la-lucha-contra-el-iff-se-hizo-presente-en-la-xx-edicion-de-totalenergies-vitoria-gasteiz-maraton-martin-fiz\/","title":{"rendered":"La lucha contra el IFF se hizo presente en la XX edici\u00f3n de TotalEnergies Vitoria-Gasteiz Marat\u00f3n Mart\u00edn Fiz"},"content":{"rendered":"
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La lucha contra el IFF se hizo presente en la XX edici\u00f3n de TotalEnergies Vitoria-Gasteiz Marat\u00f3n Mart\u00edn Fiz\n<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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El pasado 14 de mayo un equipo de valientes se ha propuso dar visibilidad al\u00a0insomnio familiar fatal (IFF), una enfermedad\u00a0prio\u0301nica. Para ello aprovechara\u0301n la\u00a0carrera de 10km, dentro de TotalEnergies Vitoria-Gasteiz Marat\u00f3n Mart\u00edn Fiz, para correr\u00a0con unas camisetas que se dise\u00f1aron para tan especial ocasi\u00f3n, recorriendo las calles de la capital alavesa.\u00a0<\/p>

El IFF es una mutacio\u0301n gene\u0301tica de origen desconocido, y que\u00a0hace que sea una\u00a0enfermedad neurodegenerativa, para la que\u00a0actualmente no existe prevencio\u0301n,\u00a0terapia ni cura. Los pacientes\u00a0empiezan con problemas en el habla, en el movimiento,\u00a0problemas cognitivos, y un insomnio irreversible. Los pacientes no llegan al\u00a0suen\u0303o en fase REM lo\u00a0que hace que su cerebro se vaya\u00a0deteriorando poco a poco.<\/p>

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Su esperanza de vida es de entre 6 y 18 meses. Al ser una enfermedad\u00a0hereditaria\u00a0dominante, cada descendiente de una persona portadora tiene un 50%\u00a0de posibilidades de\u00a0heredar esta mutacio\u0301n gene\u0301tica. En el siguiente enlace puedes\u00a0encontrar ma\u0301s informacio\u0301n\u00a0sobre las enfermedades prio\u0301nicas\u00a0(https:\/\/fundacionprionicas.org\/que-es\/<\/a>).

Desde la Fundacio\u0301n de Enfermedades Prio\u0301nicas se dedican a dar visibilidad a las\u00a0necesidades\u00a0de todas las personas afectadas directa o indirectamente por las\u00a0enfermedades prio\u0301nicas, asi\u0301\u00a0como a recaudar fondos y destinarlos i\u0301ntegramente a la\u00a0investigacio\u0301n. Pode\u0301is acceder al\u00a0siguiente enlace para colaborar\u00a0(https:\/\/fundacionprionicas.org\/colabora\/<\/a>).\u00a0<\/div><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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La lucha contra el IFF se hizo presente en la XX edici\u00f3n de TotalEnergies Vitoria-Gasteiz Marat\u00f3n Mart\u00edn Fiz El pasado 14 de mayo un equipo de valientes se ha propuso dar visibilidad al insomnio familiar fatal (IFF), una enfermedad pri\u00f3nica. Para ello aprovechar\u00e1n la carrera de 10km, dentro de TotalEnergies Vitoria-Gasteiz Marat\u00f3n Mart\u00edn Fiz, para correr con unas camisetas […]<\/p>","protected":false},"author":1,"featured_media":2600,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"elementor_header_footer","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[1],"tags":[19,17,18,20],"class_list":["post-2599","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sin-categorizar","tag-carrera","tag-maraton","tag-running","tag-vitoria"],"yoast_head":"\nLa lucha contra el IFF se hizo presente en la XX edici\u00f3n de TotalEnergies Vitoria-Gasteiz Marat\u00f3n Mart\u00edn Fiz - MARAT\u00d3N MART\u00cdN FIZ<\/title>\n<meta name=\"description\" content=\"El pasado 14 de mayo un equipo de valientes se ha propuso dar visibilidad al\u00a0insomnio familiar fatal (IFF), una enfermedad\u00a0pri\u00f3nica. 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